Every day life with a 4 year old with Type 1 Diabetes.
Friday, May 29, 2009
My first day back to work...
So Thursday was my first day back to work and even though I dreaded going I sucked it up and went...Daddy sat in on all the teaching and soaked up all the knowledge just as I did so no major worries. First of all my kids don't go to daycare, I work from 6:45am-1:45pm and my hubby works from 3-11pm so they're always with one of us! Well I left the house at 6:30am and everyone was still asleep. I got to work and txt my husband at 7:30 just so see what her number was cause when he did the 1am check she was 119 (the lowest she's been since being home from the hospital) but got no response, so I called his cell and the house phone...no answer. I tried again and again left quite a few messages how he needs to keep his phone on him at all times...blah blah. By about 9:25 I started to panic and decided to go home and check in. When I was about 5 minutes away (9:32 to be exact) he finally answered his phone! I told him I'd been trying to call all morning and I wanted to make sure she got her shot at 7:30 this morning...his only response was we've been busy!...ERRRR! So when I walked in the house Alivia was sitting at the table with a bowl of cereal....humm that's too many carbs for snack time I say (which is to be eaten at 9:30). That's cause it's breakfast I'm told! So I check the meter to see what time the check was done...9:34am! After I'd talked to him!!! So I very calmly walk upstairs to my room to calm down a bit...my desk is a wreck! Some one colored all over every thing and pushed all sorts of buttons on my computer...classic signs of a bored 2 year old who's Dad is still sleeping!!! So I ask my 4 year old...yep Daddy just woke up! I was so pissed!!! Yes we all make mistakes but don't hide the truth from me! And why not put your phone next to the bed in case you over sleep! I'm so frustrated!...Why doesn't he take this a seriously as I do? A two hour difference might not make a huge difference in anything other than the fact it threw off the whole days schedule but what if she was really low this morning keeps running through my mind! Am I totally over reacting???
Subscribe to:
Post Comments (Atom)
6 comments:
Oh hunny I am so sorry! I would feel the same way. As you get further into diagnosis you will realize how important that morning check is. Right now she is still honeymooning and her numbers are going to be running higher a lot because it is a very volitile time for her body. But I can tell you this, after Sydney wakes up now (15 months post diagnosis) if she doesn't eat w/in a half hour she drops low.
Her eating schedule is pretty strict because we are trying to avoid lows and trying to keep her sugars as good as we can...which often feels like an uphill battle.
Maybe your dh is having some denial issues or struggling with his own feelings. I know my husband and I both dealt with Syd's diagnosis differently. We realized that we had to talk about our feelings because it would only hurt Sydney if we weren't on the same page. It can be hard to be patient in these situations but maybe try talking to him and figure out how to deal with it.
From my situation, and everyone is different, this morning could have ended badly with Sydney. Waiting 2 hours past her normal breakfast time would have had her dropping low and maybe passing out or having another seizure. I don't want to scare you cause I know there is so much on your plate already. You already realize how important this morning check is and how important breakfast is for her but I hope your hubby can see it too for Alivia's sake.
So, no, I don't think you are overreacting but I do think maybe you should talk to your husband to see what his feelings are and try to get on the same page but keeping her on a schedule will help her numbers and help prevent some yucky side effects. Good luck and keep us posted.
I was also going to say if 119 is the lowest she has been thus far (which is a great number by the way!) then you haven't dealt with many lows...yet. You will get them and they suck and sometimes they are unavoidable (see my blog post for a recent post about one of Syd's lows on Saturday). But keeping her on a schedule can help to avoid some of them. Lows suck. I can't think of another word for them and so keeping her on a schedule will be very beneficial.
If your hubby is interested maybe let him scroll through some other blogs of kids who have Type 1...maybe it will help him see things differently.
Ok one more comment.I apologize for being a blog hog!!! Anyway does Alivia take Lantus for her long acting insulin--the shot she gets once a day?
Does she take it in the morning? If so, the one thing that might help put your mind at some ease is that the long acting insulin, if you are giving it in the morning, would have been wore off by 9:30. I would assume, unless you bolused in the middle of the night, she didn't have any fast acting insulin on board (like Novalog). Which, if she was 119 at 1a.m. I doubt you gave her any.
W/out any insulin in her body her sugars would have been higher and so a low is less likely to occur. So, if it happens again, that might help rest your might a teeny tiny bit. :-) Hugs! (No more comments from me!)
Thanks for your comments! It's such a relief to know I'm not crazy! Yes she is on Lantus. She gets it along with NovoLog at dinner. And she's on NPH and NovoLog at breakfast.
Oh geesh! I'm feeling for you right now! I remember going through the exact same thing with my husband. I think Daddies handle the diagnosis much lighter than we Mommies do. Most of us Moms are overprotective and take what the doctor tells us as strict advice and we stick to it. I just now left Kacey for the first time in nearly a year because I wasn't comfortable with him doing it. You're not crazy...you're just a great Mommy! I agree with Shamae....sit him down and talk to him and make sure you both get on the same page. I had to do that same thing to make him understand that this wasn't just a runny nose he could wipe with a tissue and forget about. When Kacey dropped to a 48 for the first time, THATS what it took to make him understand how easy she could have passed out or worse. When she got the flu a few months ago, she ended up back in the ER and you could see the fear set in and he knew it was really serious! So now he stays on top of her testing and reminding her.
Hope things get better (((HUGS))) just try to remember that you're both still coping with this diagnosis and the tension is going to run high so try and keep those lines of communication open instead of exploding all at once. I know its easier said than done! We've all done it. Talk, talk, talk :)
Keep us posted :)
It's going to take some time before both of you are on the same page with diabetes.
Each of you will respond differently because you have different experiences with the same diagnosis...for example, I'm the one who does the majority of overnight care over here -- so I'm the one who knows what it feels like to be tired after being up every 2 hours following a "bad night". It wasn't until my husband had a rough night dealing with diabetes that he could empathize with me. Same goes for lows. I was always the one dealing with her BAD lows (I'm talking passing out, hitting her head, combative, confused, biting, etc...) -- he never seemed to move fast enough when I told him we needed juice QUICKLY...he acted like I was just beiong a crazy mother...until the day she passed out in front of him. Now he takes those nubmers more seriously -- and ALWAYS makes sure juice is close at hand.
So, I hate to say it, but your husband is going to learn the hard way too. Once this settles in a bit, it'll be normal to feel angry...angry that you CAN'T sleep past the morning check and shot...angry that you HAVE to eat at a certain time...angry that life has changed.
Just remember that it's normal for both of you to grieve the loss of your "old life". Your husband will come around. Learning how to make this work in your home -- and in your marriage -- is a constant work in progress. You and your husband never signed up for this. But you did sign up for better or for worse...and you'll figure out how to be the team that Alivia needs you to be.
Take care of each other...your marriage is the rock that will keep everyone strong.
Post a Comment