Monday, July 6, 2009

I want an annulment!...This "Honeymoon" Sucks!!!

I am so beyond frustrated with this "honeymoon" phase! We were kinda looking forward to it when they told us her pancreas would start working on it's own and she wouldn't need much insulin, and it started out well... she was only getting 1/2 unit of NovoLog for every 45 grams and her numbers were great!!! But of course when I feel like I can handle this it all has to change, now her pancreas works when ever it wants and gives off random amounts, it mostly does it after I correct for a super high blood sugar then it's nice enough to spit out some insulin and make her drop really low! And of course it doesn't do it all the time and there's no way of knowing when it will happen. Just plain frustrating! Did everyone's kids go through this honeymoon phase? How long did it last? Her Dr told me it can last up to a year!

7 comments:

Wendy said...

Addy didn't have much of a honeymoon...her pancreas was pretty much shot by the time I finally decided to face reality and seek medical attention. In PICU the first night, the doctor told me that I would have put her to bed and she would have been gone by morning if I hadn't gotten help when I did...some mom I am...

So, while I can't say much about the dreaded honeymoon, I can tell you that it's very typical for diabetes to change the rules -- no reason, no warning, no explanation. One day you're sailing along...the next day, a wave crashes and you're left trying to figure out why.

You're not alone. This is "normal".

Joanne said...

I think Elise is still going through her honeymoon, 10 months later. Although these unexplained drops are becoming less and less frequent.

We caught Elise very early on, so there's no telling how much of her pancreas is still functioning. It is frustrating, but you somehow learn to just roll with it.

Shamae said...

The honeymoon sux. I agree. It is so random. Syd had a late honeymoon burst last december (10 months into dx) and it was awful She ended back in the hospital. Just do the best you can chica! You are doing great.

Darling16 said...

You can say that again!! I don't think anyone really knows how long it lasts. Diabetes ~ it's the nature of the beast. Wendy is right...things could be going great and then all of a sudden your thinging "how did that happen?" We just had an episode this past Feburary...things were going great. Great numbers for the whole week and then BAM ~ we couldn't keep her from going low. Candy, juice, etc. and she wouldn't come above 50...ended up in the hospital for three day connected to a IV. I thought the honeymoon was over and now I'm thinking every now and again diabetes wants to renew it's vows!! LOL.

When Olivia was diagnosed, she too was on 1/2 units of insulin. It's so amazing how such a small dose can make a big difference!!

Anonymous said...

Kaitlyn's "honeymoon"wasn't long. Since she has asthma that messed with it. Seems the first time she got sick after being diagnosed her honeymoon was over.
Don't be hard on yourself, it isn't anything you are doing. And don't denie her the special things in life, smores or other treats, you will become a pro at figuring out how to dose insulin for them.
Stay strong, we are all in your corner.

Jill said...

We're all in the same boat! We know how frustrating this phase can be :(

Kacey's honeymoon was 6 months...by the time she was 6 months into her diagnosis, we had pretty tight control. Her A1c had gone from 10.5 to 7.3 so her doctor was pleased and since it appeared that we were controlling her numbers then he approved us for pump class and we were on our way to getting "Herbie".

(((HUGS))) I know you're frustrated but you'll get through it and we're all here to support you along the way!

Jen said...

It has been over a year for us in the honeymoon phase! It is SO frustrating and we are constantly adjusting and scratching our heads! We were told the honeymoon phase can last anywhere from a couple of weeks to several years!