Sunday, July 12, 2009
After sitting and crying while reading everyones blogs this week about scary lows and crazy highs I completely lost it...I must of been in some sort of dream world...I really had it in my mind that if I could just hang in there and get past this crazy honeymoon period things would actually get better, we'd find her perfect insulin to carb ratio and we'd be on our way never looking back to all this craziness! Well the dream is now gone and I'm crushed! ********************************************* In other news I forgot to post that Alivia's celiac disease test came back negative! YAY!!! Her 1st A1c...14.1 ummm...not so good
Monday, July 6, 2009
I am so beyond frustrated with this "honeymoon" phase! We were kinda looking forward to it when they told us her pancreas would start working on it's own and she wouldn't need much insulin, and it started out well... she was only getting 1/2 unit of NovoLog for every 45 grams and her numbers were great!!! But of course when I feel like I can handle this it all has to change, now her pancreas works when ever it wants and gives off random amounts, it mostly does it after I correct for a super high blood sugar then it's nice enough to spit out some insulin and make her drop really low! And of course it doesn't do it all the time and there's no way of knowing when it will happen. Just plain frustrating! Did everyone's kids go through this honeymoon phase? How long did it last? Her Dr told me it can last up to a year!
Sunday, July 5, 2009
Last weekend we went with my family to the beach and rented a big beach house. Other than blood sugar numbers in the 550's, it was a ton of fun!
Our beach house
Alivia and Anthony testing out the water...
It was freezing!!!
Playing in the sand...
Anna, Anthony and Alivia
Alivia's 1st and Last smore...I gave her insulin right after she ate it but her 1am check was 554!