Showing posts with label doctor visit. Show all posts
Showing posts with label doctor visit. Show all posts

Wednesday, July 13, 2011

I expected more from you Glucagon...

June 29th I was awoken at 2:30am by Alivia climbing into my bed. I didn't think much of it, she ends up in our bed about once a week. Next thing I knew I heard something that sounded like someone pouring something, still half asleep I wondered if she spilled a cup of water...then I noticed my back felt wet a warm, I rolled to see her throwing up again and again and again. I woke up my husband and he changed the bedding and started the laundry while Liv and I took a quick shower. I set her up on the couch and did a quick sugar and ketone check, 96 and trace ketones. Hubby make a quick trip for some 7up and she was able to keep it all down, I thought for sure it was something she ate.

A few hours later she requested breakfast, still a little worried about her tummy but knowing she needed insulin for the ketones I gave her some toast and a banana and only after she kept it down for a while and her blood sugar started rising I bolused her for it. She said she felt good and was up playing and acting normal. Lunch time rolled around and she wanted to eat what everyone else was eating and she did, bolused her for all of it after she was done eating and she was off and running.

An hour and a half later she climbed into my bed and fell asleep...this was very odd for her, she stopped taking naps years ago. Quick sugar check showed her at 57 with over 2 units active insulin still working to bring her sugar down even more, 4oz of 7up sipped slowly, tummy ache and she wanted to lay on the couch and watch iCarly. On her way down the hallway she started throwing up again, I ran to the kitchen to get her "bucket" and she continued to walk down the hallway and into the living room all while still throwing up, leaving a trail behind her. PANIC was starting to set in, I called my husband who just left for work asking for him to return home. I was alone with 6 kids, puke all over my floors which Addy kept trying to get! And a child whose sugar was dropping QUICKLY!!! I hung up with him (he came, cleaned up the mess and left again) and called our endo clinic, I LOVE our team but I HATE the way they take their calls. You call the main number and before you hear any options you have to listen to this message that takes forever! (Or so it feels while you're panicking!!!) "Blah blah blah, we follow the Portland schools, if they are closed so are we, if they have 2 hour late start we will open at 10am, blah blah blah, our fax number is blah blah blah, for scheduling press one, diabetes management press two", I press 2," if your child is newly dx or sick press one", I press 1, "you have reached the priority line please leave your name, number, childs date of birth and 1-3 days of blood sugar number" I try my best to hold back the tears as I leave the details requested and letting them know it is urgent! While on the phone I was collecting the little red box and a few insulin syringes.

A few minutes pass since I left the message, I mix up the Glucagon, I draw up 5 units, my phone rings and she tells me to do exactly what I had just done and to remove her pump, I gave the shot while she's still on the phone. She tells he that it takes a little longer to take effect and to recheck in 20 minutes, if she's not above 80 repeat, if she's still not above 80 come straight to the emergency room.

20 minutes pass and I recheck...59! Crap!!! Why aren't you working Glucagon!!! Another 5 units given, timer set for another 20 minutes.

Recheck after only 15 minutes showed 115, thank you Glucagon! Glad you could make it!!

Timer went off 5 minutes later, recheck showed she'd dropped to 81. By this time she had no IOB and no reason to drop any more. I thought for sure Glucagon was still working and she'd start heading up soon!

Called the clinic again to give them an update and to request a new Rx for zofran, the pharmacy we use is 30 minutes away and does not have a drive through, I wanted it sent to our local pharmacy just down the street that does have a drive though but does not accept our insurance. $75 is a small price to pay to get it now and not have to drag all 6 kids (1 very sick and weak) through Target. The Rx is sent and she advises me to call before I load everyone up.

I call and am told they do not have it in stock but can order it, ummm I need it NOW! She tells me she will call around to the other Walgreen's and see who has it in stock. She calls back letting me know that the closest place is in the same town as the pharmacy we normally use 30 minutes away! Ugh, if i have to drive all the way out there i might as well save my $75 and run into Target, I tell them to never mind. I call Target and ask them to fill the Rx already on hand, I ask if they keep it in stock and told YES! Do they double check? NO! They tell me to give them 45 minutes and it will be ready.

I'm supposed to have the extra kids overnight so I swing by their house to grab their bag on the way to Target. Alivia has been in and out of it on the short ride to their house so I check her...55! Seriously Glucagon you could of stayed a bit longer!!! I grabbed a 20oz Sprite out of their fridge and passed it to her and placed the "bucket" on her lap, hopeful that even if she did throw up some of the sugar would be absorbed. I called the extra kids Mom on the way to the hospital and had her to meet me along my path to get her kids from me.

The closest hospital is 20 minutes from us but they know NOTHING about children with diabetes, we went there at Dx and they had her transferred to a children's hospital. I chose to skip the middle man and go straight for the children's hospital 45 minutes away, our endo team was there and I felt she would be best cared for there. The drive was stressful, she kept falling asleep and I was worried she might not wake up when we got there and yet I didn't want to pull over... I just wanted to get there. As we pull up to the ER parking I notice that Alivia didn't have shoes!!! How was i supposed to carry Addison and my 60 pound 4 year old?!?! One of the lot attendants came to my rescue and carried Addison for me so I could carry Liv :) We checked in just as the hubby showed up from work and they put us in a room right away. Blood sugar was up to 180 (thank you 20oz soda!) but she still had ketones. Our endo wanted her pump back on but no correction. They loaded her up on the Zofran I hadn't been able to get my hands on all day. The nurse brought her a drink and some jello, if she kept it down she could avoid the IV, if not they'd start one. The snack stayed down and a few hours later she reached the 300's! Tiny correction ordered and they sent us on our way with actual Zofran, not just a slip of paper that said we could have it if anyone ever chose to keep it in stock!! On our way home we stopped by the Target pharmacy to pick up the original Rx that had been waiting for us only to find out they couldn't find the Rx and they didn't have it in stock anyways!!!!!!

They next few days were vomit free but she still had ketones for days and was completely unable to get any insulin other than her basal with out going low for almost a week! But all is back to normal, thank goodness!!!

I'm thankful that we made it this long with out this happening but at the same time I think I had the wrong idea about Glucagon this entire time, I always thought the mini dose was as magical as the half dose she would get in a emergency. But as I learned I shouldn't rely on it in cases like this, I shouldn't expect for it to work quickly and keep her stable... and zofran will always remain in my diabetes cabinet not as a Rx sitting at the pharmacy waiting for me to need it!

Friday, May 20, 2011

Two years ago...

 Two years ago today I woke up next to my baby who'd been sick all week.

Two years ago today I noticed today was different.

Two years ago today I told my husband "somethings really wrong, she's breathing funny".

Two years ago today I called the nurse and demanded my daughter be seen, NOW!

Two years ago I buckled my baby into her carseat and handed her a cup of 7up and a puke bucket.

Two years ago today I fought back the tears as I drove, I was scared she was going to die.

Two years ago today I placed my baby on the scale and notice she's lost a LOT of weight.

Two years ago today the Dr. suggested we spend a few hours at the hospital pushing a few bags of fluid.

Two years ago today I watched as my baby lay in the hospital bed unresponsive as they started an IV and took blood.

Two years ago today the nurse came in gave me a hug and said "I'm sorry but she has type1 diabetes".

Two years ago today I waited until she left the before I cried.

Two years ago today the nurse returned, "your daughter is very sick, we can not care for her here. We'll move you down to the emergency room where they can watch her better until the transport team transports you to a children's hospital".

Two years ago today I walked next to the gurney as they pushed her to the emergency room, everyone we passed had a look of sympathy on their face as if somehow they knew how close to death my baby was.

Two years ago today a nurse came in and started my baby's first ever insulin drip.

Two years ago today the pediatrician came in and told me my baby was in DKA and how life threatening that really was.

Two years ago today I called my husband and told him to get here as soon as possible.

Two years ago today a critical care transport team showed up to get my baby.

Two years ago today I watched them load my baby into the back of pastel blue ambulance with angels on the side.

Two years ago today we arrived at the children's hospital and went straight up to the Pediatric ICU.

Two years ago today I stood and watched in disbelief as they placed an IV in my baby's neck.

Two years ago today I held my baby tight and thanked God for her life.


Two years ago today my baby's life was saved!

Wednesday, October 14, 2009

Alivia's 3rd Birthday!

Oh my gosh...I can not believe my baby is 3!!!
Seriously though this year has gone by SO fast!
I swear the older I get the faster my kids grow up!
Well this year Alivia chose a "Princess Party", it was mostly family but she had a few friends there. We had all "free" foods to eat and cake of course! I timed it so we would eat the cake at her afternoon snack time so that she'd actually be able to have some, and that she did! She was actually low when we checked her before the cake so we even let her have a little of the frosting.
(Daddy helping Aunt Christy check her blood sugar)
Alivia opening her presents...
And of course every birthday brings the well child visit. It was actually the 1st time seeing her pediatrician since before being dx. She apologized for the advice nurse not putting together all the symptoms I had mentioned during my many many calls to the clinic in the days leading up to the dx and explained to me how really rare it is to see diabetes in a 2 year old, Alivia was the youngest both the pediatrician and the on-call Dr we saw that day had seen with it.
Alivia was right on target for all her developmental goals, except for staying dry through the night. Alivia has been potty trained both day and night since 15 months old, we had to put her in pull-ups at night a few months before being dx and we haven't been able to get her to stay dry at night since! Is this a normal diabetes thing or just a stubborn child?
Well the bid shocker of the day was that she was 40 pounds!!! She was 27 pounds only 4 months ago! She also grew 2 inches since then. This put her in the 50% for height and over the 95% for weight! The Dr was a tiny bit concerned and wants me to talk with her endo about meeting with the nutritionist again.
The Dr was really impressed with how quickly Alivia has adjusted to the whole thing! And how well she just does what needs to be done without any kind of reward other than a verbal praise. She picks what finger she wants poked, actually pushes the button on the lancet to poke herself and picks where she wants her shot (usually one of her arms unless I tell her is the Lantus then it goes in her tummy). She was also amazed that her A1c went down from 14.1% to 7.7% in just 2 months!